May 22, 2013

Talk About It

The other day I was on Facebook and a link popped up in my feed to actor Chris Pine talking about epilepsy. This? I am very interested in seeing. I mean, I'd probably watch him talk about anything. (My hubby counted on that to get me to the theater for Star Trek Into Darkness, which I'll be blogging about Friday.)

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*sigh* I'm sorry, what was I writing about?

Oh, yeah. Epilepsy. A topic which has become very important to me. So I clicked to watch Chris talk about it. And the link took me to a website for an organization called - Talk About It:

Actor Greg Grunberg (The Client List, Heroes, Lost, Alias) has a son with epilepsy. He has become an activist for patients and families impacted by the condition, founding the non-profit organization Talk About It. The goal is to build awareness, promote education and end the stigma attached to epilepsy.

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Greg has gathered an impressive list of celebrities to help spread the word about his mission. Lots of big names. And that does make a difference. It gives the movement exposure. Critical momentum. But, as Greg himself says on the organization's website, more of us need to join the conversation.

Those of us who live each day with the realities of epilepsy need to stand up and talk about it. If that is you, please visit the site and look around. Follow Talk About It on Twitter. Tweet to Greg and let him know you will be part of the conversation. Join the member forum.

Even if epilepsy does not affect you or a family member, it's likely it does a friend, colleague, someone you know. Three million Americans have the condition. Spend time on the site; there is a lot of great information there. The more you know, the better you can support and help them.

I did not know a thing about epilepsy before my daughter had her first seizure. I had to educate myself very quickly. Especially about first aid, the topic Chris Pine and his Star Trek cohort Zachary Quinto cover on the Talk About It site. Knowing what to do, and what to expect when someone has a seizure can take away a lot of the fear.

I've been talking about my daughter's epilepsy since she had her first seizure at the age of three. Both here on my personal blog and through my role as a contributor to It's helpful for me to be able to share what we are going through, receive support and connect with others who understand.

Thank you, Greg Grunberg, for raising the conversation to a higher level. Thank you for your advocacy. Thank you for working to ensure those of us affected by this condition don't have to feel scared and alone.

Because that is not how it should be, for my daughter or anyone:

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